A bit about Jacobi.

Jacobi is is now 8 years old and growing up fast.

He has adapted well to cope with DMD and there is not a lot of things that will stop him from achieving his goals!

He has developed a passion for Golf and won his first trophy age 7. He enjoys nothing better than riding the hallowed fairways of Inverallochy Golf Club on his golf buggy or going somewhere different to play a new course!

He accomplished one of his dreams this year by playing at the home of golf, to follow in many of his heroes footsteps by playing – The Old Course at St Andrews.

He still enjoys going down the seashore and during the summer months, we use creels to catch lobsters and brown crabs.

About Duchenne UK.

Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy, and to beat this disease in a decade – to End Duchenne in Ten. Duchenne UK is run by parents, committed to saving this generation of boys with Duchenne Muscular Dystrophy.

The charity has been formed by the coming together of Joining Jack and Duchenne Children’s Trust, who between them over the last five years have raised over £10 million. They have spent £6.5m to date and committed a further £3.5m to accelerating research making them the two biggest funders of research in the UK.

WHAT ARE WE UP TO?

Duchenne Invest £1.25million

Aug 13, 2019

It’s been an exciting week! £1.25million pounds is being invested in trials for DMD with Duchenne UK. 1. To create new muscle with Stem Cells2. Tacking fibrosis and muscle regeneration with JA3 3 Vitamin B3 - Nicotidamide Riboside We are very happy...

Leiden University Vitamin B3

Aug 13, 2019

So much research and hard work is going on all the time in order to find a way forward with DMD! We have given £3000 to Leiden University who are investigating whether Vitamin B3 can improve regeneration of muscle and help retain muscle tissue. Can an ordinary...

Project at AGADA Biosciences

Aug 12, 2019

We have given £7000 for project at AGADA Biosciences. The aim of this is to test the impact of two already approved drugs on protecting muscle in DMD. The two drugs are Tofacitinib and Ruxolitinib. Thank you very much interest and support ...

Duchenne Invest £1.25million

It’s been an exciting week! £1.25million pounds is being invested in trials for DMD with Duchenne UK. 1. To create new muscle with Stem Cells2. Tacking fibrosis and muscle regeneration with JA3 3 Vitamin B3 - Nicotidamide Riboside We are very happy...

Aug 13, 2019

Leiden University Vitamin B3

So much research and hard work is going on all the time in order to find a way forward with DMD! We have given £3000 to Leiden University who are investigating whether Vitamin B3 can improve regeneration of muscle and help retain muscle tissue. Can an ordinary...

Aug 13, 2019

Project at AGADA Biosciences

We have given £7000 for project at AGADA Biosciences. The aim of this is to test the impact of two already approved drugs on protecting muscle in DMD. The two drugs are Tofacitinib and Ruxolitinib. Thank you very much interest and support ...

Aug 12, 2019

DO YOU WANT TO HELP US FUNDRAISE?

We are always on the lookout for helpers and donations. Are you looking for a charity to support through an event? Please get in touch.

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